tag:blogger.com,1999:blog-958628245051693162.post8005608471695294231..comments2023-06-28T03:39:34.465-07:00Comments on Counting Our Blessings: Cade's 5th swallow studyMichellehttp://www.blogger.com/profile/15909067457868282757noreply@blogger.comBlogger3125tag:blogger.com,1999:blog-958628245051693162.post-11753444521050452092012-05-03T17:30:48.399-07:002012-05-03T17:30:48.399-07:00The guilt always seems to come back, huh? I just h...The guilt always seems to come back, huh? I just have to believe that I did everything possible for my boys and that's all I could do. It also helps me to think about the fact that I am not in charge and ultimately, the outcome wasn't up to me. Hang in there! The twins are so cute and getting so grown up!The Kimmelshttps://www.blogger.com/profile/02822076540485203983noreply@blogger.comtag:blogger.com,1999:blog-958628245051693162.post-85248159135097406682012-05-03T12:45:26.340-07:002012-05-03T12:45:26.340-07:00Sarah-
Cade had 2 swallow studies while he was st...Sarah-<br /><br />Cade had 2 swallow studies while he was still in the NICU. After the second one, he was given orders to stop all oral feeds. He was aspirating even on thickened liquids plus they thought he may have bilateral vocal cord paralysis and not just unilateral. That is when all of our feeding challenges began. He missed the crucial window to learn. By the time he got out of the NICU, we had another study done which showed he could start eating by mouth, but by that time, he had already developed huge oral aversions hence the g-tube. He did get pneumonia last May, so we did another swallow study at that point. That was when they told us to use only cups with stoppers or slow-flow nipples. This last swallow study was done to see if he could safely drink from an open cup. It turns out that the answer is no, but at least he can use cups without stoppers now. I do know about the collagen injections, but no one is suggesting we need to do that right now. He only had pneumonia once, and although his swallow is delayed, they do think his muscles will get stronger and improve his swallow. I will friend you on FB. Thanks!Michellehttps://www.blogger.com/profile/15909067457868282757noreply@blogger.comtag:blogger.com,1999:blog-958628245051693162.post-81245087769179663322012-05-03T09:51:15.305-07:002012-05-03T09:51:15.305-07:00So I have a few questions. 1) Why has Cade had so ...So I have a few questions. 1) Why has Cade had so many swallow studies if he hasn't had pneumonia yet? Isn't that a good sign that he is doing a good job of getting it out of his lungs? 2) has anyone mentioned the collagen injections they do to help the paralyzed cord? 3) So I'm FB friends with a ton of other micro moms so that we can communicate more easily about our kids. Tried to find you several times...if youre interested in friending you can find me under Sarah Clark Pope. If not, no worries.Sarah Popehttps://www.blogger.com/profile/15726129938590756501noreply@blogger.com