Cade has had a rough day today. They are weaning him off the Fentanyl (sedation drug). Since he has been on Fentanyl as well as other pain medication for so long, he is actually having withdrawals now that they are weaning him. I feel so bad for him. He looks so uncomfortable. He'll move all around and then his heart rate goes up and he desats. He comes through the spells on his own, but it is just so hard to watch. I almost want to say, "Just give him more drugs; he is in pain," but I know that he needs to get off the medications in order to get better. He has been able to keep his oxygen at 50%.
Camdyn, on the other hand, has had a great day today. Jimmy called me this morning after he called the NICU to let me know the good news. Camdyn was moved off the ventilator and on to CPAP! I was so excited! That is a big step. We have been told she may have to go back on the ventilator if she gets fatigued on the CPAP (continuous positive airway pressure). She has done great with it all day though. I think she kind of surprised her nurse by doing so well and being so tiny. The CPAP is a little mask that goes over her nose, so her breathing tube is out. I am sure she is happy about that. This looks a lot more comfortable than a breathing tube. I am so proud of my little girl and hope that my sweet boy will be on CPAP soon too.
Our blog tells the miraculous story of our 24 week twins, Camdyn and Cade, and their big sister Brenna - the struggles, the challenges, and the many joys!
4 comments:
I'm crying very sad for Cade and happy for Camdyn--what a ride, and we have so far to go.
Kathy
I'm so sorry that Cade has had so many challenges; so happy to hear of Camdyn's progress. Praying for both babies to continue to grow and get stronger and healthier, especially for Cade to be more comfortable as he goes through this step in his progress. We love you all and are praying for all of your family!
Joyce
I am so sorry your twins went through all of this. I am praying that both babies get better and stronger. Also, I know you probably have no idea about me, but I actually know all about you. I would say you should probably set this to a private blog. Your stories and family pictures mostly your childrens' pictures have been stolen and used. I found out about your story through this facebook page https://www.facebook.com/profile.php?id=100005641082310&fref=ts it is sick how much of your story she has stolen. I am glad that your children are improving and I pray they continue too.
https://www.facebook.com/pages/Camdyn-and-Cades-NICU-Journey/127146200806967
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